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Sat Apr 27 12:59:56 PDT 2024


NYU Information for Practice Daily Digest (Unofficial)

 

(https://ifp.nyu.edu/2024/journal-article-abstracts/tc-2023-058469v1/) Spree Bar, a vaping system delivering a synthetic nicotine analogue, marketed in the USA as ‘PMTA exempt
Apr 27th 2024, 14:54

Background
In February 2021, the popular vaping company, PuffBar, started selling disposable e-cigarettes in the USA containing synthetic nicotine, claiming to be exempt from federal and state laws regulating products containing tobacco-derived nicotine.1 US lawmakers responded to the emerging synthetic nicotine market by clarifying that synthetic nicotine products are subject to the US Food and Drug Administration’s (FDA) regulatory regimen for tobacco products.1–3 As of 14 April 2022, the FDA has been authorised to regulate tobacco products containing nicotine from any source, including laboratory synthesis, requiring manufacturers to submit a premarket tobacco product application (PMTA).3 In October 2022, the FDA sent a warning letter to the company, alerting the owners that its products are ‘marketed unlawfully and are subject to enforcement action at FDA’s discretion’.4 5 Currently, the company appears to be selling Puffbar-branded e-cigarette products…

(https://tobaccocontrol.bmj.com/content/early/2024/03/18/tc-2023-058469?rss=1) Read the full article ›
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(https://ifp.nyu.edu/2024/news/simple-breathing-exercises-for-farmers-to-help-with-anxiety-and-stress/) Simple Breathing Exercises for Farmers to Help with Anxiety and Stress
Apr 27th 2024, 14:53

TEDx Speaker and the 2023 FFA Change Maker, Ahsley Machado says that from a young age, people in the agriculture industry are taught to use tools. Working with a lot of dairy producers, she sees how much they contribute to the local economy, but also that they’re leading the way with mental health struggles and suicide.
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(https://ifp.nyu.edu/2024/grey-literature/2024-home-and-community-based-services-hcbs-quality-measure-set-qms/) 2024 Home and Community-Based Services (HCBS) Quality Measure Set  (QMS)
Apr 27th 2024, 14:19

The post (https://ifp.nyu.edu/2024/grey-literature/2024-home-and-community-based-services-hcbs-quality-measure-set-qms/) 2024 Home and Community-Based Services (HCBS) Quality Measure Set  (QMS) was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/neu-2024-8/) Unravelling the complex tapestry of addiction: insights from recent research
Apr 27th 2024, 13:53

(https://www.cambridge.org/core/journals/acta-neuropsychiatrica/article/unravelling-the-complex-tapestry-of-addiction-insights-from-recent-research/F180DEAA578095CF3FD89C8C78A0F263) Read the full article ›
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(https://ifp.nyu.edu/2024/monographs-edited-collections/broken-womens-stories-of-intimate-and-institutional-harm-and-repair/) Broken: Women’s Stories of Intimate and Institutional Harm and Repair
Apr 27th 2024, 13:31

The post (https://ifp.nyu.edu/2024/monographs-edited-collections/broken-womens-stories-of-intimate-and-institutional-harm-and-repair/) Broken: Women’s Stories of Intimate and Institutional Harm and Repair was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/s1568163724001284/) Aging as a loss of morphostatic information: A developmental bioelectricity perspective
Apr 27th 2024, 11:47

Publication date: June 2024
Source: Ageing Research Reviews, Volume 97
Author(s): Léo Pio-Lopez, Michael Levin
(https://www.sciencedirect.com/science/article/pii/S1568163724001284?dgcid=rss_sd_all) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/17446295241245782/) Disability day programs for people with intellectual disability: Characteristics and long-term perspectives
Apr 27th 2024, 11:47

Journal of Intellectual Disabilities, Ahead of Print. There is limited knowledge regarding people with intellectual disability and their occupations in Sweden. The aim of the study was to examine young adults with intellectual disability who after secondary school participate in disability day programs (daily activity), with a focus on characteristics and longitudinal analyses of movements between occupations. The study used a national register of 26,908 people with intellectual disability, of which 13,128 individuals (48.8%) participated in daily activity. The group had slightly more men than women, many had attended individual programs in school, and significant associations were found between background factors and participating in daily activity. Proportions in daily activity remained stable over time; however, some individuals transitioned to employment or no known occupation. The study presents national and longitudinal understanding, highlighting the dominance of daily activity as an occupation. Further research is needed to increase knowledge on meaningful occupations for people with intellectual disability.
(https://journals.sagepub.com/doi/abs/10.1177/17446295241245782?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/17446295241245784/) Examining sedentary behaviours of adults with intellectual disabilities: A qualitative analysis
Apr 27th 2024, 11:47

Journal of Intellectual Disabilities, Ahead of Print. Sedentary behaviours among adults with intellectual disabilities have not been well studied. A sedentary lifestyle puts adults with and without disabilities at high risk of developing health conditions and diseases. Current literature revealed few empirical studies on the benefits of reducing sedentary behaviours with respect to the health of adults with intellectual disabilities. This research explored the factors that helped or hindered sedentary behaviours of adults with intellectual disabilities in the Canadian population. Guided by the socio-ecological model, Critical Incident Technique (CIT) was conducted. Five adults with intellectual disabilities from the Province of Ontario were interviewed and 102 critical incidents were collected. Adults with intellectual disabilities identified personal and environmental related factors that led to increased sedentary behaviours; and revealed helpful factors and wish-lists of actions that decreased sedentary lifestyle. Findings may be useful when developing programs aimed to decrease prolonged periods of sedentary behaviours specific to this vulnerable population.
(https://journals.sagepub.com/doi/abs/10.1177/17446295241245784?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/s1697260024000280/) Acute stress impairs intentional memory suppression through aberrant prefrontal cortex activation in high trait ruminators
Apr 27th 2024, 11:47

Publication date: April–June 2024
Source: International Journal of Clinical and Health Psychology, Volume 24, Issue 2
Author(s): Jixin Long, Lanxin Peng, Qian Li, Lijing Niu, Haowei Dai, Jiayuan Zhang, Keyin Chen, Tatia MC Lee, Meiyan Huang, Ruibin Zhang
(https://www.sciencedirect.com/science/article/pii/S1697260024000280?dgcid=rss_sd_all) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/13623613241246911/) Probiotics in autism spectrum disorder: Recent insights from animal models
Apr 27th 2024, 11:46

Autism, Ahead of Print. Autism spectrum disorder is a neurodevelopmental disorder characterized by a wide range of behavioral alterations, including impaired social interaction and repetitive behaviors. Numerous pharmacological interventions have been developed for autism spectrum disorder, often proving ineffective and accompanied by a multitude of side effects. The gut microbial alterations observed in individuals with autism spectrum disorder, including elevated levels of Bacteroidetes, Firmicutes, and Proteobacteria, as well as reduced levels of Bifidobacterium, provide a basis for further investigation. Recent preclinical studies have shown favorable outcomes with probiotic therapy, including improvements in oxidative stress, anti-inflammatory effects, regulation of neurotransmitters, and restoration of microbial balance. The aim of this review is to explore the potential of probiotics for the management and treatment of autism spectrum disorder, by investigating insights from recent studies in animals.Lay abstractAutism spectrum disorder is a neurodevelopmental disorder characterized by a wide range of behavioral alterations, including impaired social interaction and repetitive behaviors. Numerous pharmacological interventions have been developed for autism spectrum disorder, often proving ineffective and accompanied by a multitude of side effects. The gut microbiota is the reservoir of bacteria inhabiting our gastrointestinal tract. The gut microbial alterations observed in individuals with autism spectrum disorder, including elevated levels of Bacteroidetes, Firmicutes, and Proteobacteria, as well as reduced levels of Bifidobacterium, provide a basis for further investigation into the role of the gut microbiota in autism spectrum disorder. Recent preclinical studies have shown favorable outcomes with probiotic therapy, including improvements in oxidative stress, anti-inflammatory effects, regulation of neurotransmitters, and restoration of microbial balance. The aim of this review is to explore the potential of probiotics for the management and treatment of autism spectrum disorder, by investigating insights from recent studies in animals.
(https://journals.sagepub.com/doi/abs/10.1177/13623613241246911?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/s2214782924000368/) The use of coaching in smartphone app-based cognitive behavioral therapy for body dysmorphic disorder
Apr 27th 2024, 11:46

Publication date: June 2024
Source: Internet Interventions, Volume 36
Author(s): Emily E. Bernstein, Jennifer L. Greenberg, Hilary Weingarden, Ivar Snorrason, Berta Summers, Jasmine Williams, Rachel Quist, Joshua Curtiss, Oliver Harrison, Sabine Wilhelm
(https://www.sciencedirect.com/science/article/pii/S2214782924000368?dgcid=rss_sd_all) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/13623613241245595/) Research methods at the intersection of gender diversity and autism: A scoping review
Apr 27th 2024, 11:46

Autism, Ahead of Print. Research has increasingly focused on the intersection between gender diversity and autism. Understanding the foci, methods, and rigor of recent studies could help guide and maximize impact in this accelerating research area. We conducted a scoping review of peer-reviewed literature on this topic published between 2018 and 2023. The search generated 1432 records after deduplication. Included studies (N = 84) were of English language, featured original qualitative or quantitative findings, and examined a psychosocial connection between autism and gender spectra variables. Autism prevalence among gender-diverse people was the most-studied sub-topic. Methodological rigor was acceptable overall; however, we identified recurrent threats to generalizability and validity, including inconsistent conceptualization of constructs (e.g. gender dysphoria), weak participant sampling and characterization, and reliance on unvalidated measures. Addressing these limitations and meaningfully engaging with community shareholders will be critical to enhancing the replicability and clinical impact of future research.Lay AbstractResearch has increasingly focused on the intersection between gender diversity and autism. To better understand this literature, this scoping review systematically searched five databases for peer-reviewed literature on gender diversity and autism published between 2018 and 2023. Included studies (N = 84) were of English language, featured original qualitative or quantitative findings, and examined a psychosocial connection between autism and gender spectra variables. Most studies focused on measuring prevalence of autism among gender-diverse individuals. While the overall study rigor was acceptable, weaknesses in measurement, sample selection, and definition of key terms were noted. Promisingly, studies in this area appear to be shifting away from a pathologizing lens and towards research methods that engage in meaningful collaboration with the autistic, gender-diverse community to investigate how to best enhance the quality of life and wellbeing of this population.
(https://journals.sagepub.com/doi/abs/10.1177/13623613241245595?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/s2352250x24000265/) Fighting misinformation among the most vulnerable users
Apr 27th 2024, 11:46

Publication date: June 2024
Source: Current Opinion in Psychology, Volume 57
Author(s): Nadia M. Brashier
(https://www.sciencedirect.com/science/article/pii/S2352250X24000265?dgcid=rss_sd_all) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/13623613241243107/) Identifying autistic children: Priorities for research arising from a systematic review of parents’ experiences of the assessment process
Apr 27th 2024, 11:46

Autism, Ahead of Print. Our goal was to systematically identify, appraise and synthesise the qualitative research on parents’ experiences of the autism assessment process. The empirical studies were quality appraised using the Critical Appraisal Skills Programme tool. We synthesised the data using a meta-synthesis approach. Parents’ experiences were categorised into four phases namely: the pre-identification phase, the identification process, emotional reactions to the identification of the children as autistic and the post-identification phase. Informed by the social and human rights discourse on disability, we provide recommendations for future research, respecting the rights of all concerned. We discuss the implications of this review for future research into the autism assessment process. Parents consistently mentioned the importance of professional communication and we make recommendations for research on parent–professional partnerships. Given the sensitivities of the issues, we draw attention to ethical considerations when conducting research on the autism assessment process. Finally, we address the strategies that professionals can adopt in applying neurodiversity-affirmative approaches when identifying autistic children and supporting their parents.Lay AbstractHearing about parents’ experiences of having their child recognised as autistic could help improve the supports offered to parents. Our article may also help guide future research on this topic. We made a list of the type of research that interested us. We searched the studies already completed, only studying the research that matched our interests. After reading the studies, we rated their quality using the Critical Appraisal Skills Programme tool.It became clear that parents went through four phases during the identification process. The first phase occurred before their child was identified as autistic. The second involved the actual assessment of their child. Parents’ emotional reactions to the news were the focus of the third phase. The final phase occurred after their child was identified as autistic. We discuss the findings of our research. As there are sensitivities involved in conducting research on this topic, we identify how researchers can ensure that their research is of the best quality. We are committed to respecting the human rights of all involved, so we emphasise the need for professionals to develop good relationships with the parents of autistic children. Researchers have recently come to see autism as typical of human diversity. We encourage the professionals involved to adopt this understanding of autistic children and make practical suggestions to enable them to do so.
(https://journals.sagepub.com/doi/abs/10.1177/13623613241243107?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/s0033291724000308/) Dangers of self-diagnosis in neuropsychiatry
Apr 27th 2024, 10:54

(https://www.cambridge.org/core/journals/psychological-medicine/article/dangers-of-selfdiagnosis-in-neuropsychiatry/51029ED3B71CA62FC1085EC4A5B2E139) Read the full article ›
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(https://ifp.nyu.edu/2024/video/our-tax-dollars-at-work-clinical-trials-and-patient-care-at-the-nih-clinical-center/) Our tax dollars at work: Clinical trials and patient care at the NIH Clinical Center
Apr 27th 2024, 10:46

The post (https://ifp.nyu.edu/2024/video/our-tax-dollars-at-work-clinical-trials-and-patient-care-at-the-nih-clinical-center/) Our tax dollars at work: Clinical trials and patient care at the NIH Clinical Center was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/open-access-journal-articles/the-impacts-of-covid-19-restrictions-on-quality-adjusted-life-years-qaly-heterogeneous-effects-and-post-pandemic-recovery/) The Impacts of COVID-19 Restrictions on Quality Adjusted Life Years (QALY): Heterogeneous effects and post-pandemic recovery
Apr 27th 2024, 10:36

The post (https://ifp.nyu.edu/2024/open-access-journal-articles/the-impacts-of-covid-19-restrictions-on-quality-adjusted-life-years-qaly-heterogeneous-effects-and-post-pandemic-recovery/) The Impacts of COVID-19 Restrictions on Quality Adjusted Life Years (QALY): Heterogeneous effects and post-pandemic recovery was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/guidelines-plus/the-handbook-of-trauma-transformative-practice/) The Handbook of Trauma-Transformative Practice
Apr 27th 2024, 10:22

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(https://ifp.nyu.edu/2024/podcasts/green-social-work-and-environmental-justice/) Green Social Work and Environmental Justice
Apr 27th 2024, 10:16

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(https://ifp.nyu.edu/2024/journal-article-abstracts/ip-2023-045115v1/) Teen dating violence and the COVID-19 pandemic: trends from a longitudinal study in Texas
Apr 27th 2024, 10:11

Purpose
Teen dating violence (TDV) is a global public health and safety issue causing health impacts to youth people. This study aimed to examine: (1) the impact of the pandemic on TDV victimisation rates and (2) socioecological factors associated with sustained risk for TDV victimisation during the first year of COVID-19.
Methods
Data are from an ongoing randomised controlled trial of a TDV prevention programme in Texas (n=2768). We conducted annual assessments in 2019–2021. We used regression modelling to assess demographic, individual, peer and family factors associated with TDV risks.
Results
TDV rates declined from 11.9% in 2019 to 5.2% in 2021. While demographic, peer and family/household factors were not associated with TDV victimisation during the pandemic, individual-level factors (ie, early sexual debut, substance use, acceptance of violence and prior TDV involvement) were related to COVID-era risks. Only early sexual debut was uniquely linked to TDV victimisation risk the first year of COVID-19.
Conclusions
While TDV rates declined during the pandemic, previous victimisation, substance use and early sexual debut remained potent risks for relationship harm.

(https://injuryprevention.bmj.com/content/early/2024/03/05/ip-2023-045115?rss=1) Read the full article ›
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(https://ifp.nyu.edu/2024/grey-literature/health-centers-revenue-grant-funding-and-methods-for-meeting-certain-access-to-care-requirements/) Health Centers: Revenue, Grant Funding, and Methods for Meeting Certain Access-To-Care Requirements
Apr 27th 2024, 10:09

The post (https://ifp.nyu.edu/2024/grey-literature/health-centers-revenue-grant-funding-and-methods-for-meeting-certain-access-to-care-requirements/) Health Centers: Revenue, Grant Funding, and Methods for Meeting Certain Access-To-Care Requirements was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/news/ron-desantis-just-invited-the-wrath-of-the-satanic-temple/) Ron DeSantis Just Invited the Wrath of the Satanic Temple
Apr 27th 2024, 10:06

The program smashes through the wall between church and school, and it’s patently unconstitutional. The Supreme Court has ruled in cases like 1948’s McCollum v. Champaign that public schools could not invite preachers in. DeSantis seems to be banking on the Supreme Court’s conservative majority to back this norm-breaking law—a safe bet, given the number of court opinions in recent years that have allowed religion into public schools, including a 2020 decision that concluded that leaving religious preachers out of public schools was a kind of “discrimination.”
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(https://ifp.nyu.edu/2024/meta-analyses-systematic-reviews/key-dimensions-of-womens-and-their-partners-experiences-of-childbirth-a-systematic-review-of-reviews-of-qualitative-studies/) Key dimensions of women’s and their partners’ experiences of childbirth: A systematic review of reviews of qualitative studies
Apr 27th 2024, 09:41

The post (https://ifp.nyu.edu/2024/meta-analyses-systematic-reviews/key-dimensions-of-womens-and-their-partners-experiences-of-childbirth-a-systematic-review-of-reviews-of-qualitative-studies/) Key dimensions of women’s and their partners’ experiences of childbirth: A systematic review of reviews of qualitative studies was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/tc-2024-058647v1/) Industry responds to Australias disposable vape import ban with cheap alternatives and encouraging illegal imports
Apr 27th 2024, 08:54

Banning disposable vapes is a policy that is targeted at the vaping products that are most popular with young people who do not smoke. Disposable vapes also generate a large volume of plastic and hazardous waste that is not easy to recycle. Australia’s import ban on disposable vapes started 1 January 2024.1 While retailers are permitted to sell down their existing stock, it is apparent that some Australian suppliers have continued to import these products with 13 tonnes of disposable vapes recently seized by Australian Border Force.2 Continued imports despite the ban have been encouraged by Chinese manufacturers offering Australian importers insurance to cover potential seizure of the products at the border.3 Suppliers in neighbouring Aotearoa/New Zealand have also stated they ‘have no intention of stopping’ exporting vapes to Australia via their online shop.4 Australian retailers are continuing to offer disposable vaping…
(https://tobaccocontrol.bmj.com/content/early/2024/03/14/tc-2024-058647?rss=1) Read the full article ›
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(https://ifp.nyu.edu/2024/open-access-journal-articles/s13034-024-00707-1/) Child and adolescent mental health services in Khartoum State, Sudan: a desktop situational analysis
Apr 27th 2024, 07:56

Sudan is a Northeast African country, with 61.7% of its population under 24 years. With a large youth population and significant cultural and linguistic diversity, Sudan, like most low-income countries, has co…
(https://capmh.biomedcentral.com/articles/10.1186/s13034-024-00707-1) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/tc-2023-058282v2/) Effects of liquid nicotine concentration and flavour on the acceptability of electronic nicotine delivery systems (ENDS) among people who smoke participating in a randomised controlled trial to reduce cigarette consumption
Apr 27th 2024, 07:54

Background
Research is needed to understand the acceptability of electronic nicotine delivery systems (ENDS) as a smoking reduction aid. This study examines the acceptability of ENDS by liquid nicotine concentration and flavour among people who smoke using ENDS to reduce their smoking.
Methods
People who smoke cigarettes but were naïve to ENDS participated in a double-blind randomised controlled trial to reduce conventional cigarette smoking. Participants were randomised to either a control cigarette substitute (CS) or one of three ENDS groups; 0 mg/mL, 8 mg/mL or 36 mg/mL nicotine concentration. ENDS flavour was chosen by the participant (tobacco or menthol). Participants reported their CS, ENDS and cigarettes per day (CPD) from the past 7 days at 1-month, 3-month and 6-month follow-up visits. Participants also reported side effects and measures of satisfaction, psychological reward, aversion and craving relief. Outcome variables were modelled using linear mixed effects by the following groups: liquid nicotine concentration, flavour and a flavour-nicotine concentration interaction.
Results
Participants (n=520) were 41.2% male, 67.3% white, had a mean age of 46.2 years and smoked a mean of 18.6 CPD (SD=7.74) at baseline. All flavour and concentration groups decreased CPD from baseline to all follow-up visits with the 36 mg/mL experiencing the greatest reduction, compared with the 0 mg/mL and 8 mg/mL groups. All groups except the 36 mg/mL group decreased their product use over time. The use of menthol flavour was associated with fewer side effects at 3 months (p=0.02) and lesser aversion at 1 month (p=0.03) compared with tobacco-flavoured ENDS. The 36 mg/mL group experienced the greatest craving relief and greatest aversion compared with other groups.
Conclusions
Both nicotine concentration and flavour appear to have independent, as well as interactive, effects that influence ENDS acceptability among people who use cigarettes.

(https://tobaccocontrol.bmj.com/content/early/2024/03/18/tc-2023-058282?rss=1) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/jme-2024-109883v1/) Navigating climate responsibility: a critical examination of healthcare professionals moral duties
Apr 27th 2024, 06:56

In their upcoming article, Henk Jasper van Gils-Schmidt and Sabine Salloch highlight the supposed responsibilities of healthcare professionals in addressing the global health challenges posed by climate change. They argue that healthcare professionals’ duties to future generations and their ‘climate-related obligations’ have been neglected, primarily due to potential conflicts with other responsibilities, such as providing optimal care to current patients and maintaining patient trust. The authors suggest that these competing obligations should be viewed as part of the multifaceted identities individuals hold, encompassing roles as both physicians and environmentalists, each with normative and competing commitments. They propose that a transformative shift in physicians’ professional ethos, expanding from the predominant focus on individual patients to include obligations towards climate protection, could pave the way for identifying effective mechanisms to address these challenges.
While acknowledging the authors’ emphasis on sustainable healthcare practices, we argue that a duty to climate protection as part of…
(https://jme.bmj.com/content/early/2024/03/19/jme-2024-109883?rss=1) Read the full article ›
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(https://ifp.nyu.edu/2024/news/marginalized-communities-developed-disaster-subculture-when-living-through-extreme-climate-events/) Marginalized communities developed ‘disaster subculture’ when living through extreme climate events
Apr 27th 2024, 06:23

Dr. Joonmo Kang, assistant professor of social welfare, spent a year living in Jjokbang-chon, an extremely impoverished neighborhood in Seoul, as part of an ethnographic research project. Residents there routinely live through extreme heat and cold in tiny, 70-square-foot units about the size of a closet. Over the course of a year, he interviewed residents about their experiences and worked with local social agencies to understand how they worked with the residents.
The post (https://ifp.nyu.edu/2024/news/marginalized-communities-developed-disaster-subculture-when-living-through-extreme-climate-events/) Marginalized communities developed ‘disaster subculture’ when living through extreme climate events was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/spcare-2023-004464v1/) Cancer centre information and support services and patient needs: participatory action research study
Apr 27th 2024, 05:56

Objectives
Clear information and supportive care are necessary for oncology patients and their relatives to manage the disease (trajectory). Centres for information and support aim to address their needs by offering informal and non-medical formal services. This study evaluated whether the centres’ services offered meet the needs of its visitors, and whether there is interest for these among oncology patients treated at affiliated hospitals.
Methods
In this participatory action research, interviews were conducted among visitors of two centres (Patient Information Center Oncology (PATIO) and IntermeZZo) and among patients treated at the affiliated hospitals. Visitors were interviewed to share their experiences regarding the centres’ services offered. Patients from the hospitals were interviewed about their interest in such support. Data were collected during three different periods and adjustments were made to the centres’ services between measurements.
Results
111 (PATIO) and 123 visitors (IntermeZZo) were interviewed, and 189 and 149 patients at the respective hospitals. Reasons to visit PATIO/IntermeZZo were to relax (93.1%), seek professional advice (54.6%) and meet peers (36.3%). Visitors indicated that the visits met their needs (99.1%), citing the accessible support and the expertise in oncology. 20% of patients interviewed at the hospitals expressed interest in visiting PATIO/IntermeZZo. The majority of patients (89.6%) considered these centres an integral part of their treatment process. These findings were stable over time.
Conclusions
Patients and their relatives highly value the services of hospital-affiliated centres for information and support. Future research should address how such centres best be integrated in the Dutch healthcare system.

(https://spcare.bmj.com/content/early/2024/03/12/spcare-2023-004464?rss=1) Read the full article ›
The post (https://ifp.nyu.edu/2024/journal-article-abstracts/spcare-2023-004464v1/) Cancer centre information and support services and patient needs: participatory action research study was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/jme-2024-109875v1/) Towards an environmentally sensitive healthcare ethics: ten tasks and one model
Apr 27th 2024, 05:52

In the face of environmental crises such as climate change, pollution and biodiversity loss—which all adversely impact on health—Gils-Schmidt and Salloch explore whether physicians can be justified in taking climate issues into account in clinical care.1 While their approach centres on the ‘climate-sensitive’ decisions, physicians can carry out on the micro-level of clinical decision-making, they encourage further discussions on how climate-related issues can be included across different levels of decision-making in healthcare. We propose a list of tasks and a model to assist with navigating the range of factors and structural elements an environmentally sensitive ethics must address.
Stephen Gardiner’s notion of a perfect moral storm is central to understanding these issues.2 Gardiner describes how a perfect moral storm occurs in the centre of three overlapping conditions for human action and policymaking in the face of climate change. This storm is driven by: (1) a lack of…
(https://jme.bmj.com/content/early/2024/03/05/jme-2024-109875?rss=1) Read the full article ›
The post (https://ifp.nyu.edu/2024/journal-article-abstracts/jme-2024-109875v1/) Towards an environmentally sensitive healthcare ethics: ten tasks and one model was curated by (https://ifp.nyu.edu) information for practice.

Forwarded by:
Michael Reeder LCPC
Baltimore, MD

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