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[Article Digests for Psychology & Social Work]

NYU Information for Practice Daily Digest (Unofficial)

 

(https://ifp.nyu.edu/2024/journal-article-abstracts/1354067x241236722/) Natural origins of social essentialism: Ethnic groups, identities, and cultural transmission
Mar 29th 2024, 15:11

Culture &Psychology, Ahead of Print. This paper argues that the term ‘social essence’ is overused in psychological research and includes instances that are not covered by the basic definition of an essentialist cognition with living beings. Imagining an essence of living beings is conceptualized as a meta-cognition that wraps up an exemplars’ characteristics as a marker and assigns it a kind or species. This paper develops a framework of how social essentialism can be conceptualised to originate in natural contexts. Ethnic groups maintain a group identity that is defined by a set of diacritical markers and secured by a rule of endogamy, which functionally replicates the procreative pattern in animal species. This ‘functional homological’ relationship construes a group identity in the image of animal kinds. Thus construed, an ethnic identity appears as a natural given that safeguards the group’s cohesion and stability across generations. Hence, group-related essentialism primarily serves identity formation and provides a cognitive mechanism to distinguish the ingroup from outgroups. The intuition of an essentialised identity is perpetuated across generations by bio-social processes of enculturation. Such processes can explain an historically stable group essentialism, as well as group-biased judgements in former and contemporary societies without the need for innate sources of psychological essentialism.
(https://journals.sagepub.com/doi/abs/10.1177/1354067X241236722?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/infographics/late-night-sex-assaults-invasive-searches-the-700-women-alleging-abuse-at-rikers/) Late-night sex assaults. Invasive searches. The 700+ women alleging abuse at Rikers.
Mar 29th 2024, 15:09

The post (https://ifp.nyu.edu/2024/infographics/late-night-sex-assaults-invasive-searches-the-700-women-alleging-abuse-at-rikers/) Late-night sex assaults. Invasive searches. The 700+ women alleging abuse at Rikers. was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/00953997241226892/) Which Police Departments Make Black Lives Matter?
Mar 29th 2024, 15:09

Administration &Society, Ahead of Print. Black Lives Matter (BLM) has gained support across racial lines and considerable financial backing. Yet it is unclear whether social science has responded with research likely to save Black lives. To encourage more applied research and related public discussion, we rank police departments in the 50 largest U.S. cities by their effectiveness in keeping homicides low and not taking civilian lives, while adjusting for poverty, which makes policing more difficult. We find enormous variation in police performance and offer qualitative evidence that this reflects organizational practices. We conclude with ideas for reform.
(https://journals.sagepub.com/doi/abs/10.1177/00953997241226892?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/news/social-security-to-remove-barriers-to-accessing-ssi-payments/) Social Security to Remove Barriers to Accessing SSI Payments
Mar 29th 2024, 14:44

Today, the Social Security Administration published a final rule, “Omitting Food from In-Kind Support and Maintenance (ISM) Calculations.” The final rule announces the first of several updates to the agency’s Supplemental Security Income (SSI) regulations that will help people receiving and applying for SSI.
The post (https://ifp.nyu.edu/2024/news/social-security-to-remove-barriers-to-accessing-ssi-payments/) Social Security to Remove Barriers to Accessing SSI Payments was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/s0149718924000119/) Using personal network analysis to understand the interaction between programmes’ facilitators and teachers in psychoeducational interventions
Mar 29th 2024, 14:12

Publication date: April 2024
Source: Evaluation and Program Planning, Volume 103
Author(s): Isidro Maya Jariego, Andrés Muñoz Alvis, Daniel Villar Onrubia
(https://www.sciencedirect.com/science/article/pii/S0149718924000119?dgcid=rss_sd_all) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/10944281241229787/) Experimentation in Qualitative Organization Research: Determinacy and Indeterminacy Through Walking Ethnography
Mar 29th 2024, 13:12

Organizational Research Methods, Ahead of Print. The current article explores walking ethnography as a mode of qualitative experimentation in organizational scholarship. Walking ethnographies allow researchers to experience the field in embodied ways that reflect the fluidity and unpredictability of contemporary organizational spaces. We identify and compare two ideal-typical approaches to open, ethnographic experimentation, involving a generative tension between determinacy and indeterminacy: pragmatist (inquiry-oriented) and phenocritical (drift-oriented) experimentation. These experimental forms replace the logic of confirmation of quantitative experimentation with a logic of consequences or critique. We examine how each mode of qualitative experimentation offers a unique relation to knowledge and experience. From our field work, relying on 30 discrete walking ethnographies of entrepreneurship and innovation spaces conducted between 2016 and 2020, we develop a taxonomy of eight modalities of inquiry-dérive encounters to better understand the experiential aspects appearing in moments of experimentation. By doing so, we show how qualitative research can rediscover the potentials of qualitative experimentation as a methodological impulse, particularly in the context of contemporary modes of organizing. We discuss methodological implications for the renewal of qualitative research on the basis of public experimentation and “radical openness” in research practices.
(https://journals.sagepub.com/doi/abs/10.1177/10944281241229787?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/monographs-edited-collections/toward-a-common-research-agenda-in-infection-associated-chronic-illnesses-proceedings-of-a-workshop/) Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: Proceedings of a Workshop
Mar 29th 2024, 12:56

The post (https://ifp.nyu.edu/2024/monographs-edited-collections/toward-a-common-research-agenda-in-infection-associated-chronic-illnesses-proceedings-of-a-workshop/) Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: Proceedings of a Workshop was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/grey-literature/access-to-success-insights-for-implementing-a-multiple-measures-assessment-system/) Access to Success: Insights for Implementing a Multiple Measures Assessment System
Mar 29th 2024, 12:43

The post (https://ifp.nyu.edu/2024/grey-literature/access-to-success-insights-for-implementing-a-multiple-measures-assessment-system/) Access to Success: Insights for Implementing a Multiple Measures Assessment System was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/open-access-journal-articles/s12960-024-00899-9/) “Superheroes? No, thanks.” Accepting vulnerability in healthcare professionals
Mar 29th 2024, 12:32

In this commentary, we develop a conceptual proposal aimed to explain why a discourse of praise and admiration for healthcare professionals´ limitless dedication can trigger a general indifference to the burno…
(https://human-resources-health.biomedcentral.com/articles/10.1186/s12960-024-00899-9) Read the full article ›
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(https://ifp.nyu.edu/2024/meta-analyses-systematic-reviews/eppi-reviewer-4-software-for-research-synthesis/) EPPI-Reviewer 4: software for research synthesis
Mar 29th 2024, 12:22

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(https://ifp.nyu.edu/2024/journal-article-abstracts/02654075241233486/) Adolescents’ experiences of discrimination, disclosure of discrimination, and well-being
Mar 29th 2024, 12:12

Journal of Social and Personal Relationships, Ahead of Print. Discrimination because of one’s stigmatized identities and personal characteristics can thwart healthy adolescent development. Little is known about the role of disclosure, including whether adolescents talk about their discrimination experiences with close relational partners (i.e., parents, siblings, friends) and whether disclosure mitigates the negative effects of discrimination. Addressing this gap, this study investigated links between adolescents’ perceptions of discrimination in multiple settings (from teachers at school, from peers at school, and online) and indicators of adolescent well-being (i.e., depressive symptoms, positive identity/values, school trouble, and school bonding), and tested whether disclosure of discrimination experiences moderated these associations. Survey data from 395 parent-adolescent dyads (33% African American/Black, Hispanic/Latinx, and White, respectively) were analyzed using mixed model ANOVAs and multiple regression. Perceived discrimination was generally associated with less positive identity/values, more trouble at school and less school bonding; however, disclosure of discrimination mitigated some of these deleterious links. Adolescents’ close relationships that promote disclosure therefore represent an important context that can provide protective benefits and ensure youth garner the resources and support they need for optimal development.
(https://journals.sagepub.com/doi/abs/10.1177/02654075241233486?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/10946705241232169/) Hierarchical Time Series Forecasting in Emergency Medical Services
Mar 29th 2024, 11:12

Journal of Service Research, Ahead of Print. Accurate forecasts of ambulance demand are crucial inputs when planning and deploying staff and fleet. Such demand forecasts are required at national, regional, and sub-regional levels and must take account of the nature of incidents and their priorities. These forecasts are often generated independently by different teams within the organization. As a result, forecasts at different levels may be inconsistent, resulting in conflicting decisions and a lack of coherent coordination in the service. To address this issue, we exploit the hierarchical and grouped structure of the demand time series and apply forecast reconciliation methods to generate both point and probabilistic forecasts that are coherent and use all the available data at all levels of disaggregation. The methods are applied to daily incident data from an ambulance service in Great Britain, from October 2015 to July 2019, disaggregated by nature of incident, priority, managing health board, and control area. We use an ensemble of forecasting models and show that the resulting forecasts are better than any individual forecasting model. We validate the forecasting approach using time series cross-validation.
(https://journals.sagepub.com/doi/abs/10.1177/10946705241232169?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/funding/ovc-fy24-training-and-technical-assistance-for-anti-trafficking-service-providers-grants-gov-deadline-may-6/) OVC FY24 Training and Technical Assistance for Anti-Trafficking Service Providers (Grants.gov Deadline May 6)
Mar 29th 2024, 10:48

The post (https://ifp.nyu.edu/2024/funding/ovc-fy24-training-and-technical-assistance-for-anti-trafficking-service-providers-grants-gov-deadline-may-6/) OVC FY24 Training and Technical Assistance for Anti-Trafficking Service Providers (Grants.gov Deadline May 6) was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/02692163241229962/) What are the triggers for palliative care referral in burn intensive care units? Results from a qualitative study based on healthcare professionals’ views, clinical experiences and practices
Mar 29th 2024, 10:32

Palliative Medicine, Ahead of Print. Background:Burns are a global public health problem, accounting for around 300,000 deaths annually. Burns have significant consequences for patients, families, healthcare teams and systems. Evidence suggests that the integration of palliative care in burn intensive care units improves patients’ comfort, decision-making processes and family care. Research is needed on how to optimise palliative care referrals.Aim:To identify triggers for palliative care referral in critically burned patients based on professionals’ views, experiences and practices.Design:Qualitative study using in-depth interviews.Setting/participants:All five Burn Intensive Care Units reference centres across Portugal were invited; three participated. Inclusion criteria: Professionals with experience/working in these settings. A total of 15 professionals (12 nurses and 3 physicians) participated. Reflexive thematic analysis was performed.Results:Three main triggers for palliative care referral were identified: (i) Burn severity and extension, (ii) Co-morbidities and (iii) Multiorgan failure. Other triggers were also generated: (i) Rehabilitative palliative care related to patients’ suffering and changes in body image, (ii) Family suffering and/or dysfunctional and complex family processes, (iii) Long stay in the burn intensive care unit and (iv) Uncontrolled pain.Conclusions:This study identifies triggers for palliative care in burn intensive care units based on professionals’ views, clinical experiences and practices. The systematisation and use of triggers could help streamline referral pathways and strengthen the integration of palliative care in burn intensive care units. Research is needed on the use of these triggers in clinical practice to enhance decision-making processes, early and high-quality integrated palliative care and proportionate patient and family centred care.
(https://journals.sagepub.com/doi/abs/10.1177/02692163241229962?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/podcasts/foster-care-case-calls-attachment-science-into-question/) Foster care case calls ‘attachment’ science into question
Mar 29th 2024, 10:14

The post (https://ifp.nyu.edu/2024/podcasts/foster-care-case-calls-attachment-science-into-question/) Foster care case calls ‘attachment’ science into question was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/02692163241229961/) How palliative care professionals develop coping competence through their career: A grounded theory
Mar 29th 2024, 10:12

Palliative Medicine, Ahead of Print. Background:Palliative care professionals face emotional challenges when caring for patients with serious advanced diseases. Coping skills are essential for working in palliative care. Several types of coping strategies are mentioned in the literature as protective. However, little is known about how coping skills are developed throughout a professional career.Aim:To develop an explanatory model of coping for palliative care professionals throughout their professional career.Design:A grounded theory study. Two researchers conducted constant comparative analysis of interviews.Setting/participants:Palliative care nurses and physicians across nine services from Spain and Portugal (n = 21). Theoretical sampling included professionals who had not continued working in palliative care.Results:Professionals develop their coping mechanisms in an iterative five-stage process. Although these are successive stages, each one can be revisited later. First: commencing with a very positive outlook and emotion, characterized by contention. Second: recognizing one’s own vulnerability and experiencing the need to disconnect. Third: proactively managing emotions with the support of workmates. Fourth: cultivating an integrative approach to care and understanding one’s own limitations. Fifth: grounding care on inner balance and a transcendent perspective. This is a transformative process in which clinical cases, teamwork, and selfcare are key factors. Through this process, the sensations of feeling overwhelmed sometimes can be reversed because the professional has come to understand how to care for themselves.Conclusions:The explicative model presents a pathway for personal and professional growth, by accumulating strategies that modulate emotional responses and encourage an ongoing passion for work.
(https://journals.sagepub.com/doi/abs/10.1177/02692163241229961?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/guidelines-plus/your-posture-matters-a-strategic-approach-to-taking-care-of-it-together/) Your posture matters  A strategic approach to taking care  of it together
Mar 29th 2024, 10:12

The post (https://ifp.nyu.edu/2024/guidelines-plus/your-posture-matters-a-strategic-approach-to-taking-care-of-it-together/) Your posture matters  A strategic approach to taking care  of it together was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/news/the-incel-terrorist/) The Incel Terrorist
Mar 29th 2024, 10:09

Oguzhan Sert was 17 when he walked into a Toronto massage parlour and killed an employee with a sword. The Crown argued the attack wasn’t just murder, but an act of terror against women. The hard part would be proving it.
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(https://ifp.nyu.edu/2024/grey-literature/impact-case-study-using-longitudinal-research-to-inform-and-shape-public-policy/) Impact case study: Using longitudinal research to inform and shape public policy
Mar 29th 2024, 10:08

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(https://ifp.nyu.edu/2024/grey-literature/gendered-housing-matters-toward-gender-responsive-data-and-policy-making/) Gendered housing matters: toward gender-responsive data and policy making
Mar 29th 2024, 09:58

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(https://ifp.nyu.edu/2024/open-access-journal-articles/under-threat-the-international-aids-society-lancet-commission-on-health-and-human-rights/) Under threat: the International AIDS Society-Lancet Commission on Health and Human Rights
Mar 29th 2024, 09:49

The post (https://ifp.nyu.edu/2024/open-access-journal-articles/under-threat-the-international-aids-society-lancet-commission-on-health-and-human-rights/) Under threat: the International AIDS Society-Lancet Commission on Health and Human Rights was curated by (https://ifp.nyu.edu) information for practice.

(https://ifp.nyu.edu/2024/journal-article-abstracts/07399863241231321/) Bilingual Latina Siblings Supporting Siblings: Shared Reading as a Context for Supporting Cognitive Self-Regulation
Mar 29th 2024, 09:13

Hispanic Journal of Behavioral Sciences, Ahead of Print. To explore the ways in which Latinx older siblings support younger siblings during shared reading, researchers investigated the following question with three Latinx families in the U.S.: How are older siblings modeling and intentionally supporting focal children’s cognitive self-regulation in the context of shared reading? Analyses of video recorded interactions across six visits revealed that older siblings intentionally supported focal children’s cognitive self-regulation by fostering autonomy and choice through the use of verbal and nonverbal cues to guide attention, using prosody to engage their sibling, and to initiate reading beyond resistance, and vicarious modeling of metacognitive processes by engaging in self-corrections and demonstrating positive affect during shared reading interactions. Findings highlight the importance of older siblings, particularly sisters, as key figures in the sociocultural context of development for Latinx younger siblings in the U.S.
(https://journals.sagepub.com/doi/abs/10.1177/07399863241231321?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/open-access-journal-articles/s13033-024-00624-y/) Assessing support for mental health policies among policy influencers and the general public in Alberta and Manitoba, Canada
Mar 29th 2024, 09:03

There is a need to improve mental health policy in Canada to address the growing population burden of mental illness. Understanding support for policy options is critical for advocacy efforts to improve mental…
(https://ijmhs.biomedcentral.com/articles/10.1186/s13033-024-00624-y) Read the full article ›
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(https://ifp.nyu.edu/2024/grey-literature/study-spotlight-the-longitudinal-study-of-young-people-in-england-2/) Study Spotlight: The Longitudinal Study of Young People in England 2
Mar 29th 2024, 08:26

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(https://ifp.nyu.edu/2024/journal-article-abstracts/10442073241228838/) Opioid Use Among Social Security Disability Insurance Applicants
Mar 29th 2024, 08:07

Journal of Disability Policy Studies, Ahead of Print. Our study is the first to provide statistics on opioid use among Social Security Disability Insurance (SSDI) applicants. We use an innovative machine-learning method to identify opioids in open-ended text fields in SSDI administrative data. We find that more than 30% of applicants between 2007 and 2017 reported using one or more opioids, a rate that is about 50% higher than in the general population. Rates of reported opioid use varied over time, peaking at 32% in 2012. Reported opioid use also varied by age, gender, education, receipt of SSI, and across states. There was a positive and statistically significant association between (a) reported opioid use and SSDI awards and (b) reported opioid use SSDI award and death; these are associations and do not demonstrate a causal relationship.
(https://journals.sagepub.com/doi/abs/10.1177/10442073241228838?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/news/the-burden-of-getting-medical-care-can-exhaust-older-patients/) The Burden of Getting Medical Care Can Exhaust Older Patients
Mar 29th 2024, 07:13

Montori and several colleagues found that 40% of patients with chronic conditions such as asthma, diabetes, and neurological disorders “considered their treatment burden unsustainable.” When this happens, people stop following medical advice and report having a poorer quality of life, the researchers found. Especially vulnerable are older adults with multiple medical conditions and low levels of education who are economically insecure and socially isolated.
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(https://ifp.nyu.edu/2024/journal-article-abstracts/vio0000489/) “I need to be the person who will know to do the right thing”: Perspectives of Arab and Jewish teachers confronting child sexual abuse.
Mar 29th 2024, 06:56

Psychology of Violence, Vol 14(1), Jan 2024, 14-23; doi:10.1037/vio0000489
Objective: Teachers hold significant potential to influence children’s coping with child sexual abuse (CSA). Their beliefs and behaviors in this role are largely constructed by their sociocultural contexts, including their status as members of majority or minority groups. The purpose of the present study was to analyze, compare, and describe the experiences and perceptions of Jewish and Arab teachers in Israel coping with CSA in their everyday work. Method: Forty elementary school teachers (20 Arab [12 Muslim and eight Christian] and 20 secular Jewish) were recruited as part of a purposeful sample. Semistructured interviews and qualitative thematic analysis were conducted using a descriptive phenomenological-psychological approach. Results: While there is universality when contending with the CSA of pupils, Arab and Jewish teachers fundamentally differed in their perceptions of their role, responsibility, agency, and efficacy. Two interrelated themes emerged: (a) Perceptions of efficacy and agency when contending with CSA and (b) Perceived roles in cases of CSA (“soloists” vs. “team players”). Conclusions: The discussion highlights the Arab and Jewish teachers’ multifaceted, relational constructions of identity within their sociocultural, personal–professional, and sociopolitical contexts, which shaped their divergent understandings of and responses to cases of CSA while maintaining similar values and goals. The findings indicate the need to advance theory and promote interventions that take into account not only sociocultural contexts but also the intersectionality of power and the implications of majority and minority status. (PsycInfo Database Record (c) 2024 APA, all rights reserved)
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(https://ifp.nyu.edu/2024/journal-article-abstracts/02692163231220163/) ‘So being here is. . . I feel like I’m being a social worker again, at the hospice’: Using interpretative phenomenological analysis to explore social workers’ experiences of hospice work
Mar 29th 2024, 06:12

Palliative Medicine, Ahead of Print. Background:Social workers have a significant role in hospices working with clients who are facing death but there is limited detailed understanding of the emotional impact of this work on social workers. Research has highlighted that those involved in hospice work find the work both a struggle (e.g. because of heightened emotions) and rewarding (noting that end-of-life care can feel like a privilege).Aim:To explore UK hospice social workers’ emotional experiences of work and how this influences their practice.Design:Semi-structured interviews were conducted with hospice social workers. Interviews were transcribed and transcripts were analysed using Interpretative Phenomenological Analysis.Setting/participants:Eight social workers from different hospices in the UK.Results:Five overlapping superordinate themes emerged: making a difference to clients and families (‘the difference made’), the emotional impact of working in hospices (‘dealing with people’s emotions, and death, and dying, it’s serious stuff’), the relational context of this type of work (‘awareness of affinity to connect’), the ways in which coping is facilitated in hospices (‘seen it coming’) and a foundation theme, connection and disconnection to values (‘(dis)connection to values’).Conclusions:The results offer an exploration of social workers’ experiences of their work in hospices; how adept they were at coping and how they prepared for and made sense of the often emotionally-laden experiences encountered. Their experience of the rewards and meaning derived from their work offers important findings for clinical practice. Further research is suggested to explore a multitude of healthcare professionals’ perspectives across country settings using Interpretative Phenomenological Analysis.
(https://journals.sagepub.com/doi/abs/10.1177/02692163231220163?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/01454455241226879/) A Description of Missing Data in Single-Case Experimental Designs Studies and an Evaluation of Single Imputation Methods
Mar 29th 2024, 05:07

Behavior Modification, Ahead of Print. Missing data is inevitable in single-case experimental designs (SCEDs) studies due to repeated measures over a period of time. Despite this fact, SCEDs implementers such as researchers, teachers, clinicians, and school psychologists usually ignore missing data in their studies. Performing analyses without considering missing data in an intervention study using SCEDs or a meta-analysis study including SCEDs studies in a topic can lead to biased results and affect the validity of individual or overall results. In addition, missingness can undermine the generalizability of SCEDs studies. Considering these drawbacks, this study aims to give descriptive and advisory information to SCEDs practitioners and researchers about missing data in single-case data. To accomplish this task, the study presents information about missing data mechanisms, item level and unit level missing data, planned missing data designs, drawbacks of ignoring missing data in SCEDs, and missing data handling methods. Since single imputation methods among missing data handling methods do not require complicated statistical knowledge, are easy to use, and hence are more likely to be used by practitioners and researchers, the present study evaluates single imputation methods in terms of intervention effect sizes and missing data rates by using a real and hypothetical data sample. This study encourages SCEDs implementers, and also meta-analysts to use some of the single imputation methods to increase the generalizability and validity of the study results in case they encounter missing data in their studies.
(https://journals.sagepub.com/doi/abs/10.1177/01454455241226879?ai=2b4&mi=ehikzz&af=R) Read the full article ›
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(https://ifp.nyu.edu/2024/journal-article-abstracts/02692163231225100/) ‘People don’t realise how much their past experiences affect them in adulthood’: A qualitative study of adult siblings’ experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs
Mar 29th 2024, 04:12

Palliative Medicine, Ahead of Print. Background:There is a lack of research about the experiences and impact of having a sibling with a life-limiting condition. Studies focus on the sibling experience during childhood but the experience and impact during adulthood is unknown despite the increased life-expectancy of children with life-limiting conditions.Aim:To explore adult siblings’ perspectives on the experience of having a sister/brother with a childhood life-limiting condition and to identify their perceived needs and preferences for support.Design:A qualitative exploratory study design with data generated by semi-structured interviews and analysed using reflexive thematic analysis, underpinned by interpretivism.Setting/participants:Twenty-two siblings (17–42 years old) were recruited via a children’s hospice in England.Results:The experience of having a sibling with a life-limiting condition changes over time in response to how understandings of the meaning of a life-limiting condition develop and changing roles/relationships with parents and siblings. These experiences have an enduring impact on adult sibling’s mental health which is compounded by their unmet (and sometimes unrecognised) support needs in adolescence and adulthood. Siblings described the importance of support continuing into adulthood with a focus on the provision of psychotherapy and peer support.Conclusions:Having a sister/brother with a childhood life-limiting condition appeared to have a significant and ongoing impact on adult siblings but their support needs, particularly for psychotherapy and peer support, are overlooked. The findings highlight the importance of ensuring siblings are included in family assessments and that family-based interventions are developed to promote sibling-parent relationships.
(https://journals.sagepub.com/doi/abs/10.1177/02692163231225100?ai=2b4&mi=ehikzz&af=R) Read the full article ›
The post (https://ifp.nyu.edu/2024/journal-article-abstracts/02692163231225100/) ‘People don’t realise how much their past experiences affect them in adulthood’: A qualitative study of adult siblings’ experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs was curated by (https://ifp.nyu.edu) information for practice.

Forwarded by:
Michael Reeder LCPC
Baltimore, MD

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